IBD Teams

Patients Know Best (PKB) is successfully being used by teams to remotely manage patients with stable inflammatory bowel disease (IBD). Ulcerative colitis and Crohn's disease are long-term conditions that involve inflammation of the gut that affects over 300,000 people in the UK.

Current problems

• Patients with mild symptoms may need minimal or no treatment but still have regular appointments

• Teams experience a high level of face to face appointments

• Telephone conversations are lengthly

• Teams want ‘Annual Review’ and ‘Flare Up’ questionnaire digitally.

• Teams want to give patients online resource to support self manage

• Teams want patients to have access to their IBD blood results

PKB solution

PKB enable the transfer of patients from routine face-to-face appointments to efficient remote monitoring, enabling early detection of issues and prevent disease flare-ups requiring hospitalisation.

PKB allowing patients to monitor their own symptoms, empowering them to make the decision when they need hospital treatment and when they can self manage.

PKB features

Consultations:

• Annual Review and Flare Up questionnaires completed in PKB.

Messaging:

• Patients have access to secure messaging (saving time on the phone).

• Admin team can triage, either resolve or pass onto the nursing team.

Library:

• A wealth of resources such a Diet Advice, Counselling Info, Educational Info on IBD

Care plans:

• Individualised templates with escalation plans

• Place to track and record symptoms

• In and output charts

Benefits

• Individual care plans with esculation plans

• Online resource library

• Secure messaging between patients & team

• Digitally appointment letters and appointments

• Access to laboratory results

• Symptom and measurement tracker

Example goal for using PKB

• To give patients the ability to monitor their own symptoms, decide when they need to go to the hospital and seek information and advice about self-management of their IBD, preventing acute hospitalisation.

Workflow

1. PKB: receives patient’s appointment

2. PKB: notifies patient about appointment

3. Patient: attends appointment with the IBD team

4. IBD Team: views patients PKB record and adds care plan

5. PKB: notifies patients a care plan has been added

6. Patient: reads care plan, starts tracking symptoms

7. IBD Team: view patient’s BP and symptoms and changes treatment plan when needed

Further information:

• Colonoscopy consent care plan template: how to provide informed consent to patient digitally

• Diet in and output chart: a care plan for patients to record their in and output

• IBD Case studies: where PKB has successfully been deployed in IBD teams

• Remote monitoring facilitates the management of inflammatory bowel disease: NHSX gastroenterology digital playbook showcasing PKB

• Non-face-to-face delivery of an inflammatory bowel disease service: NHSX gastroenterology digital playbook showcasing PKB

• Giving patients with intestinal failure access to their personal health record: information sharing between different organisations using PKB