IBD Teams

Patients Know Best (PKB) is successfully being used by teams to remotely manage patients with stable inflammatory bowel disease (IBD). Ulcerative colitis and Crohn's disease are long-term conditions that involve inflammation of the gut that affects over 300,000 people in the UK.

Current problems

  • Patients with mild symptoms may need minimal or no treatment but still have regular appointments

  • Teams experience a high level of face to face appointments

  • Telephone conversations are lengthly

  • Teams want ‘Annual Review’ and ‘Flare Up’ questionnaire digitally.

  • Teams want to give patients online resource to support self manage

  • Teams want patients to have access to their IBD blood results

PKB solution

PKB enable the transfer of patients from routine face-to-face appointments to efficient remote monitoring, enabling early detection of issues and prevent disease flare-ups requiring hospitalisation.

PKB allowing patients to monitor their own symptoms, empowering them to make the decision when they need hospital treatment and when they can self manage.

PKB features


  • Annual Review and Flare Up questionnaires completed in PKB.


  • Patients have access to secure messaging (saving time on the phone).

  • Admin team can triage, either resolve or pass onto the nursing team.


  • A wealth of resources such a Diet Advice, Counselling Info, Educational Info on IBD

Care plans:

  • Individualised templates with escalation plans

  • Place to track and record symptoms

  • In and output charts


  • Individual care plans with esculation plans

  • Online resource library

  • Secure messaging between patients & team

  • Digitally appointment letters and appointments

  • Access to laboratory results

  • Symptom and measurement tracker

Example goal for using PKB

  • To give patients the ability to monitor their own symptoms, decide when they need to go to the hospital and seek information and advice about self-management of their IBD, preventing acute hospitalisation.


  1. PKB: receives patient’s appointment

  2. PKB: notifies patient about appointment

  3. Patient: attends appointment with the IBD team

  4. IBD Team: views patients PKB record and adds care plan

  5. PKB: notifies patients a care plan has been added

  6. Patient: reads care plan, starts tracking symptoms

  7. IBD Team: view patient’s BP and symptoms and changes treatment plan when needed

Further information: