Patients Know Best (PKB) is successfully being used by teams to remotely manage patients with stable inflammatory bowel disease (IBD). Ulcerative colitis and Crohn's disease are long-term conditions that involve inflammation of the gut that affects over 300,000 people in the UK.
Patients with mild symptoms may need minimal or no treatment but still have regular appointments
Teams experience a high level of face to face appointments
Telephone conversations are lengthly
Teams want ‘Annual Review’ and ‘Flare Up’ questionnaire digitally.
Teams want to give patients online resource to support self manage
Teams want patients to have access to their IBD blood results
PKB enable the transfer of patients from routine face-to-face appointments to efficient remote monitoring, enabling early detection of issues and prevent disease flare-ups requiring hospitalisation.
PKB allowing patients to monitor their own symptoms, empowering them to make the decision when they need hospital treatment and when they can self manage.
Annual Review and Flare Up questionnaires completed in PKB.
Patients have access to secure messaging (saving time on the phone).
Admin team can triage, either resolve or pass onto the nursing team.
A wealth of resources such a Diet Advice, Counselling Info, Educational Info on IBD
Individualised templates with escalation plans
Place to track and record symptoms
In and output charts
Example goal for using PKB
To give patients the ability to monitor their own symptoms, decide when they need to go to the hospital and seek information and advice about self-management of their IBD, preventing acute hospitalisation.
PKB: receives patient’s appointment
PKB: notifies patient about appointment
Patient: attends appointment with the IBD team
IBD Team: views patients PKB record and adds care plan
PKB: notifies patients a care plan has been added
Patient: reads care plan, starts tracking symptoms
IBD Team: view patient’s BP and symptoms and changes treatment plan when needed
Colonoscopy consent care plan template: how to provide informed consent to patient digitally
Diet in and output chart: a care plan for patients to record their in and output
IBD Case studies: where PKB has successfully been deployed in IBD teams
Remote monitoring facilitates the management of inflammatory bowel disease: NHSX gastroenterology digital playbook showcasing PKB
Non-face-to-face delivery of an inflammatory bowel disease service: NHSX gastroenterology digital playbook showcasing PKB