Renal Comms Toolkit

Switching from PatientView to PKB


This Comms Toolkit has been designed to help you communicate with your patients and staff about the switch from PatientView to PKB.

1. Background

The UK Kidney Association UKKA (formerly the Renal Association) has contracted Patients Know Best (PKB) to re-platform its national patient-facing system, ‘PatientView’, to Patients Know Best. This 5-year deal is expected to benefit 74,000 patients receiving care and treatment for renal disease across 72 hospitals in the UK.

Founded in 2008, Patients Know Best is a UK based social enterprise and Europe’s largest provider of personal health records. Today, the company is contracted to provide services for over 12 million people in the UK alone.

The UKKA currently provides renal patients in the UK with a view of their clinical data using the PatientView system. The move to PKB is expected to enhance the current portal to offer patients advanced features and functionality. This will include care planning, team-based messaging and an ecosystem of integrated wearable and monitoring devices.

Comprehensive technical and information governance reviews have been completed before contracting and the implementation with NHS Trusts will begin from October 2021.

The UKKA Board of Trustees is pleased with the move and believe PKB is the right national and scalable PHR platform for its renal patients. It offers great potential to deliver improved outcomes while empowering patients to take control to manage their condition.

The UKKA and PKB have developed a resource kit to support NHS trusts with the transition. This includes technical guidance and information for communicating the changes with patients and staff groups.

Key messages

  • Patients will continue to have access to their test results as they are released, and will be able to see all of the past results that are currently on PatientView.

  • The UK Kidney Association (UKKA) has contracted Patients Know Best (PKB) to re-platform its national patient-facing system, PatientView, to Patients Know Best.

  • This 5-year deal is expected to benefit all 74,000 patients receiving care and treatment for renal disease across 72 hospitals in the UK.

  • The UK Kidney Association (UKKA) currently provides renal patients in the UK with a view of their clinical data using the PatientView system.

  • The move to PKB is expected to enhance the current portal to offer patients advanced features and functionality. This will include increased security, care planning, team-based messaging and an ecosystem of integrated wearable and monitoring devices all to support clinical transformation.

  • Comprehensive technical and information governance reviews have been completed before contracting and the implementation with NHS Trusts will begin from October 2021.

  • An implementation programme has been agreed and the UK Kidney Association (UKKA) and Patients Know Best (PKB), will begin working with NHS trusts to roll out the PKB platform for all patients receiving care and treatment for renal disease in the UK.

  • For further information or support with this transition, please contact renal@patientsknowbest.com

2. Letter/Email to patients

Dear XXXX


Your PatientView system will be switched over to Patients Know Best (PKB) from XXX


From XXX, we will be switching over to a new service called Patients Know Best (PKB). PKB is a UK-based social enterprise and the leading provider of digital personal health records to the NHS.


Patients will continue to have access to their test results as they are released, and will be able to see all of the past results that are currently on PatientView. If you do not already have a PKB account, to continue to receive your data, and access many more tools to help you manage your health then visit the PKB website www.patientsknowbest.com/renal and sign up today. If you have never used PatientView, this will be a great opportunity to sign up to PKB to receive your information digitally and a range of tools to manage your Kidney Care.


The new PKB system offers you increased security, and advanced features and functionality to support the management of your renal condition, as well as any other health conditions you may have. You will have improved access to care plans, team-based messaging, appointment letters, and a range of other features to support you with self-management. For example:


  • a personal journal - keep a record of your condition

  • resource library - access information and support services

  • symptom tracker - keep a log of symptoms and share with teams (if needed)

  • share your record - with carers or extended health or care teams

  • connect wearable devices - and share data with teams in real-time

  • store important information - all your diagnoses, medications, allergies or clinical correspondence, seamlessly in one place.


To learn more about the features and benefits of PKB visit www.patientsknowbest.com/patients-and-carers.


You can find out more about the switch over and how to register at https://patientsknowbest.com/renal. However, if you have any further questions, please get in touch with a member of our team via email to help@patientsknowbest.com


Yours sincerely,

3. Poster for waiting rooms

You can use these sample posters to print off and put up in your waiting areas. There are two designs (with a background or not). Just click on the link underneath the poster, then you can print it off.

EXAMPLE - For patients not registered with PKB:

EXAMPLE - For patients already registered with PKB:

4. Newsletter copy for NHS trusts

[short version]


PatientView switches over to Patients Know Best

The UK Kidney Association UKKA (formerly the Renal Association) has contracted Patients Know Best (PKB) to re-platform its national patient-facing system - PatientView, to the PKB personal health records digital platform.

PatientView currently provides over 74,000 patients receiving care and treatment for renal disease in the UK with a view of their clinical data. However, the new PKB system offers patients and their renal teams more advanced features and functionality. This includes increased security, care planning, team-based messaging and an ecosystem of integrated wearable and monitoring devices to support clinical transformation.

The implementation plan will be agreed with the trust and our respective renal teams over the coming weeks.

For more information, please see click here or email renal@patientsknowbest.com.

[long version]

PatientView switches over to Patients Know Best

The UK Kidney Association UKKA (formerly the Renal Association) has contracted Patients Know Best (PKB) to re-platform its national patient-facing system - PatientView, to the PKB personal health records digital platform.

Patients Know Best is the largest provider of PHRs in Europe and currently contracted for over 12 million lives in the UK. [ADD/REMOVE this if relevant to your Trust : As you may be aware, this personal health record platform is also currently used trust-wide/ within our XXXX departments, to share health information with our patients and teams for the management of care.]


The current PatientView system provides renal patient’s in the UK with a view of their clinical data. The move to PKB is expected to benefit 74,000 patients receiving care and treatment for renal disease across 72 hospitals.


The new PKB system supports clinical transformation, offering patients and renal teams increased security, and advanced features and functionality for the management of renal disease, as well as any other health conditions the patient may have.


This means improved access to care plans, team-based messaging, appointment letters, and a range of other features to support patients with self-management. For example:


  • a personal journal - to help keep a record of any conditions or symptoms

  • resource library - access to information and support services

  • symptom tracker - a log of symptoms to share with teams (where applicable)

  • record sharing - with carers or extended health or care teams

  • connect wearable devices - to share data with teams in real-time

  • store important information - diagnoses, medications, allergies or clinical correspondence, all in one place.


A comprehensive technical and governance review has been completed by the UKKA and the implementation with our trust will begin from XXXX. This plan will be agreed with the trust and our respective Renal teams over the coming weeks. A PKB Renal Programme webpage has also been developed to help support patients and renal teams through the transition. This includes a package of training for staff where required.


For more information, please click here or email renal@patientsknowbest.com

An example of a newsletter article by University Hospitals of Leicester NHS Trust

5. Links to useful information