The UK Kidney Association (formerly known as the Renal Association (RA)) has contracted Patients Know Best (PKB) to re-platform the national patient-facing system PatientView (PV) to the PKB personal health records platform (PHR).
Some organisations will already be familiar with Patients Know Best, which is the largest provider of PHRs in Europe and currently contracted for over 15 million patients in the UK.
The current PV system provides renal patients in the UK with a view of their clinical data. However, this 5-year deal between PKB and the UKKA is expected to benefit more than 70,000 patients receiving care and treatment for renal disease across 62 hospitals by offering patients and their renal teams more advanced features and functionality with PKB. This includes increased security, care planning, team-based messaging and an ecosystem of integrated wearable and monitoring devices to support clinical transformation.
A comprehensive technical and governance review has been completed.
The UKKA IT team are currently completing the development of a data flow that will send the PV data in the current PV file feeds or RDA feeds (for those sites who have already started sending UKRDC feeds) to PKB in the required format, where the data will be displayed for patients when signing on to the PKB system. There will be an upload of historic PV data into the PKB records, and once live, all new data will also flow into the PKB record.
To support renal teams in making this transition, we have created a guide to switching from PatientView to Patients Know Best.
At any point, a renal team (whether they are existing PKB or non PKB customers) is welcome to work with PKB to begin using PKBs additional features and functionality including questionnaires, care planning, symptom tracking and secure messaging for their total renal cohorts.
How will the patient record creation and registration process work with PKB? What will change?
How will local hospital staff troubleshoot patient logins or will these be managed by PKB?
Will PDF letters still work and be accessible on PKB? Hospitals currently send patient letters in PDF format to PatientView.
Data sharing – will anything change? Will hospitals need a new data sharing agreement with PKB?
What will hospitals be able to do in PKB? Is there a manual for administrators of PatientView?
Can you clarify the future costs?
For sites in a direct contract with PKB:
For sites not contracted with PKB by January 2022:
What advice has been given to renal system suppliers ?
Can hospitals ask patients if they are happy to receive their letters electronically only i.e. no paper? And if they are happy to be contacted for surveys, clinical trial invites?
Who can I contact for further information?
If you have any questions, please contact PKB at email@example.com.
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